Thursday, 9 December 2010

Good Men May Be Mistaken - More Thoughts on the End of Life Assistance Bill

In my previous post, I wondered who or what it is, that is creating the relentless push for euthanasia; if this is something that is directed or if it is a general zeitgeist that is prevalent at the moment. It isn't the first time that something like this has happened and in the early 1900's a similar discussion was taking place amongst the chattering classes and had enthusiastic support from left and right. Many people whom we now term as great were involved in it. I'm talking of eugenics and the campaign to introduce compulsory sterilisation for 'defectives' in the 1912 Mental Deficiency Bill.

The starting point for this debate was in the 1840's with Francis Galton, a cousin of Darwin. He studied the hereditary lines of 'great men' and concluded that unless something drastic was done, the breeding of degenerates was going to outstrip the breeding of more worthy people. From this, the seed of eugenics and sterilisation of the poor and the mentally ill was sown.

By 1905 this idea was reaching its peak. The main opponents to it were GK Chesterton and Josiah Wedgewood (another cousin of Darwin's) who did a filibuster of 150 speeches sustained by barley water and chocolate. (His modern descendent, Tony Benn, is also against euthanasia). But it's the people who were for it that make the interesting reading.Leonard Darwin, George Bernard Shaw, Winston Churchill, Beatrice and Sidney Webb, the Fabian Society, Arthur Balfour and none other than William Beveridge. There are more here. It also gained support from the Archbishops of Canterbury and York and Dean William Inge, Chesterton's bete noire. These people did the rounds of the Fabian Society, used their influence in church and government to promote it and gave professorships at universities to supporters.

Today it seems almost inconceivable that this happened. And to be fair to those who supported it, we have the benefit of hindsight. The horrors of the Nazis Aktion T4 programme had not been realised. But nevertheless the fact remains; for nearly 40 years, this idea was common currency amongst the brightest and best of our society. America, Sweden, France and Germany all enacted sterilisation laws. The UK escaped by the skin of its teeth. Good men may be mistaken. Great men may be mad.

Chesterton devoted an entire book to arguing against this bill. Amongst other things he said was this;

It is necessary to point out the essential fact which the eugenists seem to have forgotten all over again. We breed cows for milk; and not for a moral balance of particular virtues in the cow. We breed pigs for pork. . . . Therefore we cannot, and do not, criticise them in the way in which we criticise our fellow creatures when we call them feeble-minded; or when we betray our own feeble-mindedness by calling them Unfit. For the very word Unfit reveals the weakness of the whole of this pseudo-scientific position. We should say that a cow is fit to provide us with milk; or that a pig is unfit to provide us with pork. But nobody would call a cow fit without naturally adding what she was fit for. Nobody would call up the insanely isolated vision of the Unfit Pig in the abstract. But when we talk about human beings, we are bound to break off the sentence in the middle; we are bound to call them Unfit in the abstract. For we know how varied, how complex, and how controversial are the questions that arise about the functions for which they should be fitted.

In this argument, Chesterton puts his finger on the fallacy behind eugenics and what I believe is the fallacy underlying the assisted dying debate. The assumption underlying the legitimacy of those in favour of such things, is usefulness. A person has worth if they are industrious, make money, stand out, are independent and not a burden; they are useful. By contrast, if they do not have any of these attributes then they are not useful, therefore they have less worth. It is a seductive argument, because we need people to work and produce and pay taxes. And it is particularly appealing to people who work hard, make money and are independent. All their perception of their worth is tied up in being useful. And that is the glamour that is seducing the likes of Terry Pratchett, AC Grayling, Zoe Wanamaker and others to supporting this.They cannot bear the thought of being dependent on others or being limited by illness or disability. But the darker side of that view is how it affects their perception of others. If your worth is measured by these things, how do you then measure people that aren’t useful?

One of the things that has nagged me about this debate is this; the people who are promoting this bill are people of independent means with powerful friends. Whether or not euthanasia gets passed, they will go when they will and not a second before. If they want to take a poison, they have the friends to obtain it for them and to protect assisting relatives in any court battle afterwards. Which means in short that this bill isn’t about them. It’s about ‘helping’ other people. People that they don’t see very much of, that ‘aren’t the same’ as them, who aren’t very useful; at least not as useful as they are to society. And they do not seem to be aware of that value judgement. It underlies the feting of Susan Boyle and Stephen Hawking; they are celebrated, not simply because they are disabled, but because they are disabled people who are also useful. But the girl who lives near me with the same condition as Susan Boyle is not being feted or celebrated. Nor is anyone else with disability.

This post has wandered somewhat, but to get back to the point; what and who is driving this? I think that in part this is a fashion, a way of being avant garde. Sex is no longer taboo; death still is and the breaking of it holds a fascination. It’s also to do with the political climate. We are in a time of austerity and a growing elderly population. And the great unspoken debate going on underneath this is how they are all going to be provided for. These two forces are feeding off one another and creating a maelstrom into which the poor, the old and the disabled are being sucked into. As indeed they always have done. Those who speak of putting down animals in pain should reflect that we also put animals down when they are too old to work, too expensive to keep and when they have too high a medical bill. But what may save us is what saved us the last time; the experience of others. We have not yet enacted this legislation. Others have and we may benefit from their misfortune. In March this year, a petition with 100 000 signatures to allow those over 70 who consider their life 'complete' assistance to die, was presented to the Netherlands parliament. Let's hope for all our sakes that this doesn't succeed.

7 comments:

blackdog said...

I have been following this thread with some interest Julie. I too am at somewhat of a loss to ascribe it's force to any one thing or person. I am though, taken aback somewhat by the some of the proponents; some of whom I have admired in the past. I am now forced to review this admiration.
Not Christian, I nonetheless ascribe to many of it's tenets, especially the sanctity of life.

"Any man's death diminishes me" as Donne said, and I believe it to be true in spite of it's religious context. We none of us, I believe have the right, to take life except in extremis, for our own defence of our life, or others in mortal danger, and I include in that the taking of my own.

I find it all abhorrent. To place statutes in place that allow us down that slippery slope, is to place us all in jeopardy. Who is to judge worth, some apparatchik appointed by the state? Because there would be takers, that's for sure. Dept. for Euthanasia and Eugenics, too awful to contemplate.

Julie said...

Hypercryptical,

have been having some problems publishing your comment. Will try and sort it out.

Julie

HyperCRYPTICal said...

Julie - yesterday, I left a comment on Witch Doctors blog. I find this whole affair quite worrying.

I do not feel that the End of Life Assistance Bill was driven by the political classes, but by those who are considered as 'celebrities' and a scattering of those in the medical profession who feel that they have a particular insight in the indignity of dying.

For sure, there are those that die an undignified death - my dad was denied morphine until the last day and I had to beg for it to be given to him then - but this has not coloured my judgement.

I have witnessed those who have been diagnosed as nearing 'imminent death' who have lived for many years after.

I can appreciate there are those with a terminal illness, who are of sound mind, who know that the last stage of their illness will lead to an agonising death - and if the truth be known, I can understand their awful dilemma. What would I want, if that were me?

Nevertheless, I do strongly feel that for assisted dying to become a legal right - we embark on the slippery slope to euthanasia of those who are considered a burden on society.

I see it happening on the Liverpool Care Pathway. Sometimes, the LCP is initiated as euthanasia by the back door.

The seeds are already sown.

Anna.

Witch Doctor said...

I lay awake last night thinking about this. The key thing leading up to the atrocities not only in Nazi Germany but in many other "civilized" countries, was the vast following that the "thinkers" of society could generate among their fellow "thinkers" as well as those in society who didn't spend too much time thinking. These people, before Hitler, probably genuinely thought they were doing a great service to humanity. Heaven knows what Hitler and his followers thought.

Today, it is "self determination" rather than eugenics that seems to top many ethical arguments and, of course, most of us can see why. However, you have to ask yourself if those who followed the conclusions of the eugenics group were doing so because their thoughts were self-determined. Of course they weren't. They were indoctrinated. But indoctrination does not need to be obvious or a plan or a conspiracy. You might say it happens naturally every day of our lives. Thoughts and ideas can be manipulated very, very easily, even unknowingly. This is as true today as it ever was.....back to the bottled water.

Is self-determination of thought and therefore deed the norm? Or is it more likely that manipulation of thought is the norm and self-determination is so intertwingled with this manipulation that it barely exists. I know what we would like to think, but are we correct in our assumption? We need to tease apart what we think about self-determination and whether worshiping this concept inappropriately could in itself bring society to its brink.

As someone who reacts strongly against anyone who attempts to influence my own "self-determination" this will require quite a bit of naval-gazing ……which I usually try to avoid!

Witch Doctor said...

I think its "navel" gazing.

No it's not. It's "naval" gazing because I'm all at sea with this.

Julie said...

I wonder if this is because we are not as close to death as we used to be. In my mum and dad's time, early death was a frequent occurence and nursing took place at home. There was no fascination with it; it was regarded as a straightforward enemy that could strike at any time. My dad lost two of his family to diptheria for example. But now that things are much more sanitised, maybe it makes the contemplation of euthanasia easier. I'm not sure.

I've been thinking a lot about self determination and autonomy in this and I think I can feel another post coming on. It's all about what the base of the law is.

the a&e charge nurse said...

I think it is difficult to conflate the different schools of thought that led to eugenics and euthanasia.

Eugenics was driven by fantasies about human design, something that could be shaped or controlled without taking into account the views of subjects.
In essence eugenics was a top down model reminiscent of NuLabours centralised approach to health care planning.

Euthanasia on the other hand has become part of the health agenda because those at the top are pressed by ordinary people who have developed greater confidence in expressing their views about how we die.
Needless to say attitudes towards euthanasia are sometimes driven by personal experience such as prolonged suffering, or failures to understand or accept a persons existential situation.

So far two powerful paradigms have exerted a near stranglehold over death, namely the church (in it's various guises) and medical teaching - but the views of those outside of these traditions also have a right to be heard and it is unlikely they will be shut up despite veiled comparisons to Nazi's?